Archive for January 2013

Pre-Op Surgery Tour

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Here is our big girl in the surgery waiting room at Dell Children’s waiting for her pre-op tour of the PANDA unit where they prepare for procedures.

After a quick lunch in the hospital cafeteria between her appointments, we went down to the surgery waiting. There we met a very nice Child Life Specialist for the tour. Child Life Services is responsible for the overall well-being of the patients, reducing stress and anxiety, and training and education beyond the scope of the nurses. They are most visible throughout the hospital through all of the toys!

Miriam did very well talking about her procedure. She was a little nervous at first, but warmed up (especially after seeing the toys and hearing about the popsicles.

We walked through the steps for the morning of the procedure, starting with where we will wait with her while everything is ready. Then we walked back to the stop sign where the doctors will take over and we will giver her hugs and kisses. (Grandparents are allowed up to this point too!)

The we were shown a procedure room. There were a lot of equipment and lights and machines and hoses in there. And the bed, which Miriam said made here “a little confused.” She was apprehensive about the anesthesia mask the Child Life Specialist gave her to try out:

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But then Cecilia tried hers out and Miriam did too. Her only job for the surgery is to take deep breaths in the mask, and she got in some good practice.

The next stop was the “wake-up room” where she will recover after the procedure. (The toy cars were probably more exciting, though.) She will wake up slowly and naturally, and then the doctors will call her parents back as soon as she is up. She will also get juice or a popsicle at this time. When asked which she would prefer, she said, “both.” They thought she needed to practice that part, so she and Cecilia both got a “practice popsicle.”

After the tour we visited the chapel and prayed for Miriam and her doctors.

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When she got home, Miriam told us about everything that happened and explained the whole process. She has been acting it out with her dolls this evening, using the mask to help “Miriam” go to sleep. So we know she learned a lot and is working through it. She will be much more comfortable when we go next week for her pre-op labs and the following Monday for the surgery. We are very grateful for the time the staff took to talk to her and take such good care of her.

(And here are some bonus pictures of the chapel, because daddy.)

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Virtual Pre-Op Hospital Tour

Miriam and her family will take a pre-op tour of the Dell Children’s Medical Center.

Want to go along? You can take a virtual tour to read about the process and see pictures of the facility.

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Well Check

Miriam had her 4 year old well check today (and Hildi had her 9 month appointment too). Both are very healthy, and Miriam is in good shape for her procedure.

Here is a photo of all three girls with their pediatrician, Dr Sheila Boes of Pediatric Associates of Austin. She has been taking care of Miso from almost the beginning.

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The best news is that Miso’s BMI is 75-85%ile for her age, which is a good indicator of her eating habits and nutrition (one of the early concerns with thoracic insufficiency). Appetite is one of the first things to go when lung function is impaired, which also makes the procedure harder on the body. Eating well and being this healthy also means she will be able to recover from the surgery better.

After the appointments, Miriam and Cecilia got to have gelato and Central Market! Ice cream is a special reward for big girls who do a particular something good in a particular plumbing apparatus instead of clothing [wink] and both they both did that yesterday!

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Happy girls!

Cards Cards and More Cards

Miso got many many more cards in the mail in the past few days. She has had so much fun opening all of them and reading them. And then she put most of them in her scrapbook (there were so many she wanted to take a break and do the rest tomorrow).

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They are already making a huge impact on her. She is thinking about her surgery as a family event with the support of everyone she reads about on the cards. She likes the pictures and drawings especially.

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We know she will love having the scrapbook to read while she’s in the hospital.

Happy Birthday to Miso!

Today is Miriam’s 4th Birthday. We had a wonderful birthday dinner with Miriam’s Godparents at Chuy’s.

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And then opened presents, including a handmade Marry Poppins doll made by Abeea.

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Here’s a better picture of the doll:

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And Mommy made a cake to Miso’s specifications: chocolate cake with white icing with strawberries on top.

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Miso’s Pastebook

We took a trip to the scrapbook section of Hobby Lobby this weekend to pick out a scrapbook for Miriam to keep all of the letters and cards she receives. That way she can take them with her to the hospital and remember everyone who loves her and prays for her.

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She had fun putting her first few cards and photos in the book this evening. She calls it her “pastebook.”

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Holy Family Novena

Grandpa Deacon Dan requested that I be remembered at nine daily Novena Masses by the Missionaries of the Holy Family.

Thanks Grandpa Dan!

Holy Family Novena

 

Holy Family Prayer

JESUS, Son of God and Son of Mary, bless our family. Graciously inspire in us the unity, peace, and mutual love that you found in your own family in the little town of Nazareth.

MARY, Mother of Jesus and our Mother, nourish our family with your faith and your love. Keep us close to your Son, Jesus, in all our sorrows and joys.

JOSEPH, Foster-father to Jesus, guardian and spouse of Mary, keep our family safe from harm. Help us in all times of discouragement or anxiety.

HOLY FAMILY OF NAZARETH, make our family one with you. Help us to be instruments of peace. Grant that love, strengthened by grace, may prove mightier than all the weaknesses and trials through which our families sometimes pass. May we always have God at the center of our hearts and homes until we are all one family, happy and at peace in our true home with you. Amen.

Miriam’s Angels

Miriam has started drawing angels on the chalkboard/easel she got for christmas. Completely unprompted, she says they are to be with her for her surgery.