Miriam had a very good night. Lots of activity, but she was very restful in between. Mommy and Daddy each got to lie down with her and hold her for a little while. Overall it was much better than expected.
Her surgeon came by in the morning and was pleased with her progress. He said she’s actually about a day ahead. She will get more frequent respiration therapy to encourage her right lung to continue to expand. And she will get to sit up today, which I think will make her happy. It will help her lungs as well.
The next big milestone will be to remove the chest tube, which will decrease the irrational to her lung and diaphragm. That is also part of why her breathing is still shallow and fast. Removing it will also give her greater mobility. That process will start today and hopefully it will come out tomorrow.
Now she is having her teeth brushed, which she likes. And the she will get to have some juice. That got a big nod and smile when it was suggested.
It was a big and busy morning for Miso. More respiratory therapies and she got to get out of bed for the first time and sit in a chair. She smiled really big when the physical therapists asked her if she wanted to get up. It was very exhausting for her, but still very exciting. She sat on her own without support and even stood up for a minute.
Then she played with her leappad for a long time. She’s weak and tired, but very much herself.
Finally got that Popsicle!
At 7:00 Miriam woke up as perky and talkative as she has been yet. She talked about all kinds of things and seemed surprised (and relieved) that her surgery was already done! She asked to see her book with all the cards, and we read that for a while.
Later, she had a visit from some Dominican sisters who beautifully sang a Gregorian Ave Maria for her. Miriam was very shy while they were here.
She did very well one her next few breathing treatments, and we are still waiting on word from the doctors about progressing her chest tube.
When she got sleepy and began fussing again, I brought her the new quilt Abeea made and put it on her legs. She reached down and pulled it all the way up to her chin.
Guess she just needed an Abeea hug to go to sleep.
finally got that popsicle! what a relief! we’ve been waiting for this picture. did that make her happy?
Yes it made her happy, even though she doesn’t look too happy in the photo. She’s still pretty uncomfortable most of the time.
Miracles, miracles, miracles. Thanks to God & all His angels & saints! We are all so lucky to know a real messenger from heaven. Miriam is so very special, but I guess y’all already know that. Our thoughts & prayers are with all of you there. Take care of each other.
We send our love,
Mary Ann & Dave
We are still praying for Miso. What a blessing that she is a day ahead. I pray she heals fast and has no pain. What a strong, beautiful girl. There is so much love in this family, it is nice to see. I wish I had an Abeea like that :) I know God is with you all.